Hospice Bill of Rights

 

Consistent with living wills and advanced directives, the patient's family or guardian may exercise the patient's rights when the patient is unable to do so. Hospice organizations have an obligation to protect and promote the rights of their patients.

 

Dignity and Respect: Patients and their Hospice caregivers have a right to mutual respect and dignity. Caregivers are prohibited from accepting personal gifts and borrowing from patients/families/primary caregivers. In addition, patients have the right to:

  • Have relationships with Hospice organizations that are based on honesty and ethical standards of conduct;

  • Be informed of the procedures for lodging complaints about the care that is (or fails to be) furnished and regarding a lack of respect for property;

  • Know about the disposition of such complaints; and voice their grievances without fear of discrimination

 

Decision Making: Patients have the right to:

  • Be notified in writing of the care that is to be furnished, the types (disciplines) of caregivers who will furnish the care, and the frequency of the services that are proposed to be furnished;

  • Participate in the planning of the care, be advised of any changes in the care, and be advised that they have the right to do so;

  • Refuse services and be advised of the consequences of refusing care; and

  • Request a change in caregiver without fear of reprisal or discrimination.

 

Privacy: Patients have the right to:

  • Confidentiality with regard to information about their health, social, and financial circumstances and about what takes place in the home; and

  • Expect the Hospice organization to release information only as consistent with its internal policy, required by law, or authorized by the client.

 

Quality of Care: Patients have the right to:

  • Receive care of the highest quality;

  • Be admitted into any program assured that all necessary palliative and supportive services will be provided to promote the physical, psychological, social, and spiritual well-being of the dying patient.; and

  • Be told what to do in the case of an emergency.

  • All medically related Hospice care is provided in accordance with physician's orders and that a plan of care, which is developed by the patient's physician and the Hospice interdisciplinary group in conjunction with the patient, specifies theservices to be provided and their frequency and duration; and

  • All medically related personal care is provided by an appropriately trained h ome care aide who is supervised by a registered nurse.

 

Patient/Caregiver Responsibilities: The patient/caregiver have the responsibility to:

  • Show respect and consideration for staff and equipment;

  • Notify the Hospice in advance of any treatment, testing, or medications not provided or arranged by the Hospice;

  • Notify the Hospice of changes in condition (e.g., pain, need for emergency care);

  • Follow the Hospice Plan of Care and work as a Partner with the hospice team in the provision of care;

  • Notify the Hospice if the visit schedule needs to be changed;

  • Inform the Hospice of the existence of any changes made to advance directives;

  • Provide a safe environment for care to be provided; and

  • Assume responsibility for any charges for which you have been notified of responsibility and/or incurred for services outside of the Hospice Plan of Care.

 

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